Well, we've made it through a few days at home now with Megan. So far she seems to be recovering pretty well. She doesn't seem to mind wearing her arm restraints at all (now that there is no IV underneath) and is surprisingly cooperative with them. She was really happy to get home. The morning after surgery she was done being at the hospital. She did not want to stay in her room any longer and begged to go "outside." She has her ups and downs and is pretty tired yet does not sleep very well... But the biggest problem she has is her eating restrictions. Oh how she would love to eat a cracker right now! She is on a strict diet of only stage 1&2 baby food, applesauce, pudding, and yogurt. Even ice cream is permitted ONLY if it is melted, and mashed potatoes must be runny. Considering Megan never liked eating baby food even when she was a baby, we knew this would cause some problems. But don't worry...it's only for
SIX WEEKS!!! So far the only thing we can get her to eat is chocolate pudding. She won't even
look at anything else without getting mad. We keep trying other things but with no success. So for the past three days she has literally only had chocolate pudding and milk. We are hoping one of these days she will decide to try something else. We have even tried mixing other things with it, but no, she is too smart for that! I tried making the pudding with Pediasure instead of milk but it will not set so it is more like chocolate soup. Suggestions anybody?? Oh well...when else will she be able to get away with only eating chocolate pudding? We figure it's better than nothing at all. (Thank you Johnson family! ;)
As for drinking, she does pretty well, but has to use a special "soft sip" bottle. It is a squeeze bottle with a soft skinny tube that squirts into her mouth. She is okay with it but it is really slow and doesn't drink as much with it. She looks like a little gerbil drinking out of it...
All things considered, she is doing well and seems to be recovering well. Thanks to all of you for your thoughts, comments, concerns, and prayers! The doctors and nurses are always very impressed with Megan's progress and we know she couldn't do it without you!
4 comments:
Suggestions - egg nog, make "milk shakes" with milk, fruit (banana, canned peaches), a little honey or sugar and vanilla (don't know if this if ok for her diet or not) - doesn't have to be frozen - bananas will thicken it up. Other flavors of pudding? Chocolate yogurt (yes, grandsons Ryan and Aidan like it.)Homemade stew mixed in the blender - looks like, but tastes better than baby food. Sorry - that's a tough diet! Aunt Sylvia
Oh, I only wish I had more to give you this morning!! I am so sorry, that must be so rough, I hope the time flies by so she can eat normal again...let us know if there is anything we can do to help! A milkshake or smoothie does sound good...I think I could do that for six weeks! Good luck guys, we are still praying for her recovery.
That's wonderful that she doesn't mind those restraints! It helps when eating is already a big problem. I hope she'll soon start sleeping better, too! Unfortunately I don't have any suggestions, but I hope things improve in the eating department. And that 6 weeks will just FLY by!!!
Glad to hear she is recovering well. I wish I had any suggestions for you, but all I can think of is maybe yogurt. Does she like yogurt? that's got to be so tough for all of you. Hope this time goes by quickly.
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